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Increased longevity and the comorbidities associated with intellectual and developmental disabilityThe contributors, all world experts in their fields, also discuss what we can learn from the presence of co-morbidities.
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World-first video trial to help babies at risk of autism thriveVideo technology is helping researchers learn more about the early communication style of infants with a family history of autism, ADHD or intellectual disability.
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Comparing Parental Well-Being and Its Determinants Across Three Different Genetic Disorders Causing Intellectual DisabilityThis cross-sectional study examined parental well-being in caregivers of children with one of three genetic disorders associated with intellectual disability.
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.
Research
Day occupation is associated with psychopathology for adolescents and young adults with Down syndromeIn comparison to those young adults attending open employment from 2009 to 2011, those attending day recreation programs were reported to experience...
Research
Caring for a child with severe intellectual disability in China: The example of Rett syndromeIntellectual disability affects more than 1.5% of the population of children in developing countries yet we know little about the daily lives and support...
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It's not what you were expecting, but it's still a beautiful journey: The experience of mothers of children with Down syndromeThe purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome and to explore spirituality.
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To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of WellbeingThe aim of this paper was to describe the meaning of wellbeing for children and youth with disabilities from their perspective.
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Application of Population-Based Linked Data to the Study of Intellectual Disability and AutismData linkage is the bringing together of specific datasets from different sources using demographic information on individuals within a population.