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Research

Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage study

The aim of this study is to generate new knowledge about the aetiologies of CP through a focused investigation into the role of congenital anomalies

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Factors associated with respiratory morbidity in children, adolescents and young adults with cerebral palsy

The primary aim of this study is to identify the predictors and prevalence of severe respiratory disease in children, adolescents and young adults with CP.

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How low can we go? Recognizing infants at high risk of cerebral palsy earlier

This paper is a timely reminder that we must recognise infants at high risk of cerebral palsy earlier using evidence-based assessments.

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Prenatal factors in singletons with cerebral palsy born at or near term

This article discusses the prenatal factors in singletons with cerebral palsy born at or near term.

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A comparison of activity, participation and quality of life in children with and without spastic diplegia cerebral palsyNew Page

The aim of this study wa to measure activity, participation and QoL in children with CP and to determine how these differ from a comparable group of...

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The placenta and neurologic and psychiatric outcomes in the child: Study design matters

Much information exists about functions of the human placenta and about potential mechanisms by which the placenta may influence human health or disease...

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Measurement properties and feasibility of chronic pain assessment tools for use with children and young people with cerebral palsy

Chronic pain assessment tools exist for children, but may not be valid, reliable, and feasible for populations with functional, cognitive or communication limitations, for example, cerebral palsy (CP). This study aimed to (i) identify chronic pain assessment tools used with children and young people and rate their measurement properties; (ii) develop a CP specific feasibility rating tool to assess the feasibility of tools in CP; and (iii) categorise tools according to reporting method.

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Common data elements to standardize genomics studies in cerebral palsy

To define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP). Method: Candidate data elements were collated following a review of the literature and existing CDEs.

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"Capturing the magic": identifying the active ingredients of a physical activity participation intervention for children and youth with disabilities

This study aimed to define the active ingredients of a participation-focused physical activity intervention for children and youth with disabilities.

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An exploration of cerebral palsy aetiology: assisted reproductive technology and congenital anomalies

This project will explore in detail the role of two known risk factors for cerebral palsy: assisted reproductive technology and congenital anomalies.